About Cancer SurvivorLink
Cancer SurvivorLink was developed through the cooperative work of a pediatric cancer epidemiologist and the medical director of the Cancer Survivor Program at
Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta/Emory University
and a health information technology engineer from Himformatics,
a healthcare information technology consulting firm. The funding for the design and creation of SurvivorLink was through a federal grant from the
Agency for Healthcare Research and Quality (AHRQ) in 2009.
The idea of SurvivorLink came from the need for survivors to be knowledgeable about their
long-term health risk and able to advocate for their health care. SurvivorLink was developed as a patient-centric communication tool that served as a safe,
secure repository for key health documents in an online health record for survivors, and then a mechanism in which survivors could share their online health record with
providers through the continuum of their care.
The SurvivorLink Team has grown to include: a software engineer, a research nurse specialized in health education, an epidemiologist and a psychologist.
The team continues to work to find innovative ways to utilize technology to optimize healthcare delivery and empower survivors as they advocate for
their long-term healthcare.