Welcome to SurvivorLink

SurvivorLink has been designed to:

1. Increase awareness and knowledge about the life-long healthcare needs of pediatric cancer survivors

2. Increase communication about the specific healthcare needs of individual survivors between:
   1. Survivor and Family
   2. Cancer Survivor Team
   3. Primary Care Provider
   4. Healthcare Subspecialist

On SurvivorLink, over the next three years we plan to develop portals targeting three areas of the survivor care community:

• Provider Portal, which will give providers access to:
  • CME educational material about survivorship
  • Links to useful resources to assist in providing care for pediatric cancer survivors
  • Access to your patients' Survivor Healthcare Plan* which will assist you in identifying existing medical problems in your patient, late effects they are at risk for, and recommended screening for your patient
• Patient Portal, which will provide access to the patient's Survivor Healthcare Plan (SHP) including:
  • Cancer Treatment Summary
  • Individualized Late Effects Risk Profile
  • Individualized Surveillance Plan for the detection of late effects
• Research Portal, which will be used to:
  • Perform IRB-approved studies to better understand the frequency of late effects
  • Design interventions to prevent the long-term health consequences of late effects of cancer therapy

Patients and Providers are encouraged to consent to participate in SurvivorLink research so we can better understand how to teach and communicate survivor related healthcare issues.  To participate in research, make sure the ‘I would like to participate in the Research Study’ check box is selected when you register.

*access to a patients SHP must be authorized by the patient.